多发性硬化症患者对帮助决策的关键要素的看法:一种定性研究
概括
多发性硬化症 (MS) 患者需要更好的治疗决策工具. 这项研究确定了西班牙患者和护士之间支持共享决策 (SDM) 的虚拟决策辅助工具的关键要素.
科学领域:
- 神经学 神经学
- 健康科学 卫生科学 卫生科学
- 患者护理 患者护理
背景情况:
- 多发性硬化症 (MS) 患者在治疗选择方面面临决策冲突.
- 涉及患者和医疗保健专业人员,特别是护士的共享决策 (SDM) 可以减轻这种冲突.
- 开发有效的患者决策辅助工具对于影响自主性和生活质量的复杂治疗选择至关重要.
研究的目的:
- 确定为复发性复发性多发性硬化症患者创建患者决策辅助的基本要素.
- 为了在西班牙社会文化背景下定制这种援助.
- 促进共享决策 (SDM) 和减少决策冲突.
主要方法:
- 使用重点小组与被诊断患有多发性硬化症的患者进行定性研究.
- 半结构面试探讨了医疗保健需求,SDM流程和同行支持计划特点.
- 在数据分析中采用了主题分析和建设主义自然主义的方法.
主要成果:
- 出现了三个主要主题:获得高质量的信息,对治疗选择 (疗效,副作用,管理,日常影响) 的全面知识,以及患者在决策中的角色 (参与与非参与).
- 参与患者需要支持积极参与,而非参与的患者更喜欢被动的角色.
- 来自西班牙4个重点小组的27名多发性硬化患者的数据为这些发现提供了信息.
结论:
- 在西班牙确定患者对治疗选择的需求与国际研究结果一致.
- 确定的主题对于与多发性硬化护士和患者合作开发虚拟患者决策辅助至关重要.
- 拟议的援助旨在加强护士-患者的理解,并简化SDM过程,遵守国际患者决策援助标准协作标准.
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