在健康研究中合作:一种混合方法的患者参与评估
Stella Babatunde1, Sadia Ahmed2,3,4, Maria Jose Santana2,3,4
1Alberta Strategy for Patient-Oriented Research (AbSPORU) Patient Engagement Team, Calgary, Canada. stella.babatunde@ucalgary.ca.
Research involvement and engagement
|August 1, 2023
概括
患者研究合作伙伴 (PRP) 和研究人员在健康研究中进行了有效的合作. 支持是可用的,大多数人觉得听到了,尽管建议在未来的以患者为导向的研究 (POR) 伙伴关系中改善多样性.
科学领域:
- 卫生研究方法论 卫生研究方法论
- 患者参与到研究中.
- 合作研究模型 合作研究模型
背景情况:
- 以患者为导向的研究 (POR) 涉及患者作为整个研究周期的积极合作伙伴.
- 患者研究合作伙伴 (PRP) 和研究人员之间的有效协作存在有限的研究.
- 本研究评估了RePORT患者咨询委员会 (PAC) 中的患者参与.
研究的目的:
- 评估患者与RePORT患者咨询委员会 (PAC) 的参与.
- 确定在研究伙伴关系中有意义地参与的障碍和促进者.
- 为未来的以患者为导向的研究倡议提供信息.
主要方法:
- 该RePORT PAC由9名PRP和9名研究人员组成.
- 匿名在线调查 (PPEET工具) 在两个时间点进行.
- 半结构面试进行,录音,转录,并使用NVivo进行主题分析.
主要成果:
- 来自PRP的高参与率和来自调查和采访的研究人员的中等参与率.
- 委员会成员报告说,他们得到了足够的支持 (培训,补偿) 并感到被倾听.
- 对多样性的反应是不同的;采访给出了改善多样性和合作的建议,包括PRP对研究材料的投入.
结论:
- 促进协作环境是与健康研究中不同参与者的有意义参与的关键.
- 确定了PRP与研究人员伙伴关系的优势和改进领域.
- 为未来面向患者的研究项目提供建议.
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