对患有雷特综合征的个体进行观察者报告的沟通能力 (ORCA) 测量的验证
Bryce B Reeve1, Nicole Lucas2, Dandan Chen2
1Center for Health Measurement, Department of Population Health Sciences, Duke University School of Medicine, Durham, NC, USA; Department of Pediatrics, Duke University School of Medicine, Durham, NC, USA.
概括
观察者报告的沟通能力 (ORCA) 测量被验证为女性的雷特综合征 (RTT). 这种由护理人员报告的工具有效地捕捉了RTT患者的沟通能力.
科学领域:
- 神经发育障碍 神经发育障碍
- 通信科学 通信科学
- 心理测量 心理测量 心理测量
背景情况:
- 雷特综合征 (RTT) 是一种罕见的神经发育障碍,影响沟通能力.
- 现有的措施可能无法完全捕捉RTT的女性的沟通细微差别.
- 护理人员报告的措施对于评估功能性沟通至关重要.
研究的目的:
- 为了验证观察员报告的沟通能力 (ORCA) 测量,以评估Rett综合征 (RTT) 的女性的沟通能力.
- 确保ORCA措施是RTT患者的护理人员可靠和有效的工具.
主要方法:
- 对19名RTT患者 (2岁以上) 的护理人员进行定性采访,以获得概念和认知采访.
- 量化验证研究涉及279名护理人员,以评估构建的有效性和可靠性.
- 修改了基于定性反的ORCA测量.
主要成果:
- 修改后的ORCA措施被很好地理解并捕获了相关的沟通概念.
- 证明了高可靠性 (克伦巴赫的α=0.90,ICC=0.88).
- 与沟通和象征性行为量表 (r = 0.73) 显示出强烈的相关性,没有显著的底部或天花板效应.
结论:
- 修改后的ORCA测量是可接受和有效的护理人员报告的工具,用于评估RTT女性的沟通能力.
- 支持在RTT的临床和研究环境中使用ORCA措施.
- 进一步的研究应该探索纵向有效性和与临床医生为基础的措施的关联.
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