教育联络改善了为患有状细胞病的学生提供学校住宿的实施
Mary Claire McGlynn1, Aisha Gilliam2, Suzanne K Pierson3
1Department of Pediatrics, Washington University School of Medicine, St. Louis Children's Hospital, St. Louis, Missouri, USA.
Pediatric blood & cancer
|August 4, 2023
概括
教育联络 (EL) 显著增加神经心理测试 (NPT) 和教育住宿,如IEP和504计划,用于患有状细胞疾病 (SCD) 的儿童. 这一角色对于改善综合性SCD护理中的学术支持至关重要.
科学领域:
- 儿科血液学 儿科血液学
- 神经心理学 神经心理学
- 教育心理学教育心理学
背景情况:
- 与健康同龄人相比,患有状细胞疾病 (SCD) 的儿童经常面临学术上的挑战.
- 许多患有SCD的儿童需要神经心理测试 (NPT) 和教育适应,例如个性化教育计划 (IEP) 和第504条计划 (504s).
- 尽管有认可的需求,但由于各种医疗障碍,大量患有SCD的儿童没有获得这些必不可少的NPT和住宿.
研究的目的:
- 调查假设,一个专门的教育联络 (EL) 集成在SCD护理团队加强了NPT和教育住宿的实施.
- 评估EL相互作用对获得NPT,IEP和504计划对SCD儿童的影响.
主要方法:
- 一项回顾性研究对316名5至20岁的SCD儿童进行了回顾性研究,这些儿童在2017年至2020年期间在一个中心接受护理.
- 用单变量分析和多重逻辑回归来分析数据.
- 该研究研究了基线住宿率和EL接触对NPT和住宿状态的影响.
主要成果:
- 与EL接触的儿童更有可能接受NPT (OR:5.385),有IEP (OR:4.580),并有504计划 (OR:2.038) (p <.001所有).
- 总体住宿率从基线的52.8%增加到研究结束时的64.6% (p < .001).
- 此外,EL相互作用还与诸如中风史,急性胸部综合征和住院等医疗因素有关.
结论:
- 教育联络员 (EL) 的存在明显改善了SCD儿童获得NPT和教育住宿的机会.
- 建议将EL纳入综合性SCD护理团队,以确保儿童获得适当的教育支持.
- 这一角色对于解决SCD儿童的学术需求至关重要,它补充了医疗管理.
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