了解气泡状球菌病患者的心理社会负担和应对策略 - - 一项定性面试研究
Christoph Nikendei1, Anja Greinacher1, Anna Cranz1
1Centre for Psychosocial Medicine, Department of General Internal Medicine and Psychosomatics, Heidelberg University Hospital, Heidelberg, Germany.
PLoS neglected tropical diseases
|August 4, 2023
概括
气泡状球结核病 (AE) 患者经历了显著的心理社会负担. 解决这一问题需要全面的信息和支持,以改善患者的福祉和社会意识.
科学领域:
- 寄生虫学的寄生虫学
- 医学心理学 医学心理学
- 公共卫生 公共卫生
背景情况:
- 气泡状赤球菌 (AE) 是一种严重的动物性寄生虫病.
- AE经常模仿恶性瘤,主要影响肝脏与无声增长.
- 患者经常经历心理困扰和对疾病进展的恐惧.
研究的目的:
- 探索AE患者对疾病相关心理社会负担的看法.
- 了解应对机制和信息搜索行为.
- 调查AE患者的主观疾病概念.
主要方法:
- 对AE患者进行了N=12次半结构面试.
- 专注于心理社会负担,应对,信息搜索和疾病概念.
- 采用了对采访文字转录的专题分析.
主要成果:
- 确定了五个主要主题:感知负担,应对,社会影响,未来前景和信息搜索.
- 患有AE的患者认为这种疾病具有相互关联的生物,心理和社会影响.
- 获得信息和支持对患者产生了积极的影响;基于网络的搜索增加了焦虑.
结论:
- 心理社会疾病是AE患者管理的一个关键方面.
- 卫生专业人员应提供全面的信息,以减少心理负担和耻辱.
- 提高患者和社会意识对于更好的AE护理至关重要.
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