衡量分享个人健康信息的意愿:一个系统的审查
Marcello Benevento1, Gabriele Mandarelli1, Francesco Carravetta1
1Department of Interdisciplinary Medicine, University of Bari, Bari, Italy.
愿意分享个人健康信息对于研究至关重要. 二次数据使用是主要的驱动因素,而隐私问题可以通过匿名化和感知到的好处来减轻.
科学领域:
- 医疗信息学 医疗信息学
- 生物医学研究生物医学研究
- 数据科学数据科学数据科学
背景情况:
- 个人健康信息对于数字时代的医疗保健和研究至关重要.
- 了解披露个人健康信息的意愿是必不可少的.
- 这项研究分析了这种意愿的决定因素和测量方法.
结论:
- 隐私是阻碍数据共享的主要问题.
- 有效的数据匿名化和对好处的明确沟通可以缓解隐私方面的担忧.
- 未来的研究应该专注于开发标准化的测量工具.
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