患者对炎症性肠病延迟诊断的看法和经验:一种定性研究
Eleanor Cross1, James A Prior1,2, Adam D Farmer1,3
1School of Medicine, Keele University, Keele, UK.
BJGP open
|August 7, 2023
概括
由于尬,症状正常化和医疗保健系统问题,患者经常面临炎症性肠病 (IBD) 的延迟诊断. 解决这些因素可以改善患者的治疗结果,减少诊断延迟.
科学领域:
- 胃肠病学 胃肠病学
- 患者体验研究 研究研究
- 医疗保健系统分析 医疗保健系统分析
背景情况:
- 诊断炎症性肠病 (IBD) 是复杂的,往往导致显著的延迟.
- 患者在IBD的诊断延迟与较差的临床结果有关.
- 了解患者的观点对于确定诊断延迟背后的原因至关重要.
研究的目的:
- 调查报告IBD诊断延迟的患者的经验和观点.
- 确定患者报告的导致IBD诊断延迟的因素.
主要方法:
- 使用半结构面试进行的定性研究.
- 参与者通过社交媒体和国家IBD慈善机构招募.
- 专题分析和持续比较方法应用于采访数据.
主要成果:
- 出现了四个主要主题:患者因素,初级保健因素,系统因素和延迟的后果.
- 患者报告了由于尬,症状正常化以及医疗保健提供者误解或驳回症状而导致的延迟.
- 系统性问题,如沟通不良和无法获得测试结果,也导致了诊断延迟,参与者注意到对健康的负面影响.
结论:
- 结果可以帮助患者-GP沟通关于潜在的IBD症状.
- 针对初级保健的干预措施可以帮助减少IBD的诊断延迟.
- 解决患者和系统因素是改善炎症性肠病诊断过程的关键.
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