提高家长倡导青少年自闭症服务的能力:一项随机临床试验
Julie Lounds Taylor1, Leann Smith DaWalt2, Meghan M Burke3
1Department of Pediatrics and Vanderbilt Kennedy Center, Vanderbilt University Medical Center, Nashville, Tennessee, USA.
概括
协助计划有效地提高了家长倡导青少年自闭症成人服务的能力. 这项干预措施在知识和宣传技巧方面取得了更大的收益,特别是对于面临更大的挑战的父母来说.
科学领域:
- 发展心理学 发展心理学
- 公共卫生 公共卫生
- 特殊教育 特殊教育
背景情况:
- 患有自闭症谱系障碍 (ASD) 的过渡年轻人在获得必要的成人服务方面遇到重大障碍.
- 提高家长倡导技能是改善服务获取和改善该人口的结果的潜在策略.
- 有限的研究存在于有针对性的干预措施,以加强家长的倡导转型年龄的青少年与自闭症.
研究的目的:
- 评估ASSIST (倡导技能和支持干预) 计划在改善家长对自闭症过渡年龄青少年的倡导能力方面的有效性.
- 确定干预是否会增加对成人服务的了解,并提高认知到的宣传技巧.
- 为了确定预测更大的治疗收益的参与者特征.
主要方法:
- 一项随机对照试验,涉及185名青少年自闭症家长 (16-26岁) 在美国三个州.
- 参与者被随机分配到12周的ASSIST干预组或接受书面材料的对照组.
- 通过基线和干预后的调查,评估了家长的倡导能力,对成人服务的了解和感知到的倡导技能.
主要成果:
- 与对照组相比,ASSIST计划中的家长在成人服务知识方面取得了显著的改善.
- 治疗组在干预后的感知宣传技能方面也显示出显著的收益.
- 基线知识较低,宣传能力较低,应对方式较不积极的家长经历了最实质性的治疗益处.
结论:
- 援助计划是一个有效的干预措施,以增强家长的倡导能力,以过渡年龄的青少年自闭症.
- 这种干预似乎对那些在倡导服务方面遇到更大的困难的父母来说最有益.
- 需要进一步的研究来证实,如果改善家长倡导转化为更好的服务获取和自闭症青少年的学后结果.
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