在家庭中患有幼年痴呆症 - 混合方法研究研究
A-S Helvik1,2, L Hvidsten3, K Engedal1
1The Norwegian National Centre for Ageing and Health, Vestfold Hospital Trust, Tønsberg, Norway.
Aging & mental health
|August 8, 2023
概括
年轻发病痴呆症 (YOD) 患者的家庭照顾者面临着重大的日常生活挑战,包括社会隔离和经济不安全. 质量访谈显示,尽管有数量报告,但很少有未满足的需求,但存在重大困难.
科学领域:
- 神经科学是一个神经科学.
- 老年学是一门学科.
- 心理学 心理学 心理学
背景情况:
- 年轻发病痴呆症 (YOD) 影响65岁以下的人,为患者和家人带来独特的挑战.
- 需要进行研究,以了解YOD患者及其家庭护理人员所面临的日常障碍.
- 专注于年轻人群中的阿尔茨海默氏症痴呆症 (AD) 和前性痴呆症 (FTD).
研究的目的:
- 探索家庭护理人员对影响YOD患者日常生活和需求的因素的经验.
- 调查六个预定义的主题,影响YOD个体及其家庭支持系统.
主要方法:
- 一种结合定量和定性数据收集的混合方法方法.
- 定量阶段:74名家庭护理人员完成了坎伯韦尔老年人需求评估 (CANE).
- 定性阶段:对13名阿尔茨海默氏症和FTD患者的家庭照顾者进行深入采访.
主要成果:
- 定量数据 (CANE) 表明,在YOD患者的家庭护理人员中,没有多少未满足的需求.
- 与AD相比,FTD的行为和关系需求在FTD中更为普遍 (p < 0.1).
- 定性主题突出了日常活动中断,社交网络丢失,关系变化,不可预测的行为,健康风险和经济不安全.
结论:
- 关于未满足需求的定量发现与质量数据形成对比,这些数据揭示了青年儿童家庭的重大日常生活困难.
- 由于YOD,家庭照顾者对生活的社会,个人和财务方面产生了深远的影响.
- 这项研究强调了管理年轻发病痴呆症的家庭所面临的复杂,多方面的挑战.
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