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Updated: Jul 19, 2025

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了解结核性硬化综合体的影响:TSC-PROM的开发和验证

Annelieke R Müller1,2,3,4, Michiel A J Luijten4,5,6, Lotte Haverman4,5,6

  • 1's Heeren Loo, Amersfoort, The Netherlands.

BMC medicine
|August 8, 2023
PubMed
概括

一种新的结核性硬化综合体患者报告结果测量 (TSC-PROM) 已为成年人开发. 这种有效可靠的工具评估了TSC对日常功能的影响,为临床和研究使用提供以患者为中心的见解.

关键词:
大人的成年人.运作 运作 运作智力障碍 智力障碍是一种智力障碍.患者报告的结果衡量措施.生活质量生活的质量.罕见的遗传疾病 罕见的遗传疾病结核性硬化综合体 结核性硬化综合体有效性 有效性是有效性的.

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