为脊髓损伤患者开发疼痛教育资源
Eva Widerström-Noga1,2, Kimberly D Anderson3, Linda E Robayo1
1The Miami Project to Cure Paralysis, University of Miami Miller School of Medicine, Miami, FL, United States.
Frontiers in public health
|August 9, 2023
概括
一个新的教育指南,SeePain,是为脊髓损伤 (SCI) 和慢性疼痛患者开发的. 本资源旨在提高健康素养和沟通,以更好地管理SCI患者的疼痛.
科学领域:
- 神经学 神经学
- 康复医学 康复医学 康复医学
- 卫生识字 卫生识字
背景情况:
- 慢性疼痛,包括神经病痛,是脊髓损伤 (SCI) 患者常见和复杂的问题.
- 目前用于SCI相关的神经病痛的治疗方法通常是不够的,因为这种情况的多面性质.
- 建议采用包括身体,认知和教育方法在内的多模式策略来管理SCI疼痛.
研究的目的:
- 开发和评估一个教育资源,SeePain,旨在增强SCI和慢性疼痛患者的健康素养和沟通.
- 将SCI患者,他们的家人和医疗保健专业人员的见解纳入资源的设计.
主要方法:
- SeePain资源是使用现有的疼痛文献和利益相关者的直接投入来创建的.
- 使用定性访谈和主题分析,与利益相关者系统评估资源的内容,可理解性和格式.
- 该资源是基于利益相关者的反来反复改进的.
主要成果:
- SeePain资源被SCI患者,他们的重要其他人以及医疗保健提供者系统评估和修改.
- 利益相关者的反证实了该资源的相关性,并指导了其内容,可理解性和格式的改进.
- 最终的SeePain指南是SCI患者及其家人的一种全面工具.
结论:
- SeePain教育资源是提高SCI和慢性疼痛患者健康素养和改善SCI和慢性疼痛患者沟通的宝贵工具.
- 计划在更大的SCI群体中进行进一步的定量验证.
- 这个资源有可能改善与SCI相关的慢性疼痛的管理.
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