患有功能衰竭的人的育儿:ANZDATA注册表育儿数据的演变和完整性的评估
Rhea Danner1, Erandi Hewawasam2,3, Christopher Edward Davies2,3
1Central Northern Adelaide Renal and Transplantation Services (CNARTS), Royal Adelaide Hospital, Port Road, Adelaide, South Australia, 5000, Australia. rhea.danner@sa.gov.au.
Journal of nephrology
|August 9, 2023
概括
澳大利亚和新西兰透析和移植注册表 (ANZDATA) 的育儿数据集显示了强大的核心数据完整性. 然而,新的,详细的临床数据项目需要策略来改善高风险脏患者的捕获.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學專業.
- 生殖健康 生殖健康
- 临床数据管理 临床数据管理
背景情况:
- 澳大利亚和新西兰透析和移植登记处 (ANZDATA) 自1968年以来一直在收集家长数据.
- 父母调查于2001年推出,并于2017年扩展,包括更多产科和临床细节.
研究的目的:
- 在调查演变过程中评估ANZDATA家长数据集的完整性.
- 评估接受脏替代疗法 (KRT) 的男性和女性患者的数据完整性.
主要方法:
- 使用描述性统计数据来量化数据的完整性.
- 分析了1963年至2021年的家长调查,以比较随着时间的推移的完整性.
主要成果:
- 在所有调查代中,核心数据项目保持了超过85%的完整性.
- 在2018年引入的数据项目显示了可变的完整性,药物治疗和分娩数据范围从70-85%,和透析相关项目从44-80%.
结论:
- 在ANZDATA的家长数据集证明了核心信息的可靠性.
- 提高详细临床数据的完整性对于了解KRT患者的结果和风险至关重要.
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