最重要的是:探索痴呆症患者的日常生活
Jacoba Huizenga1,2,3, Aukelien Scheffelaar3, Nienke Bleijenberg4,5
1Institute of Social Work, HU University of Applied Sciences, Utrecht, The Netherlands.
International journal of geriatric psychiatry
|August 11, 2023
概括
痴呆症患者在活动,联系,归属,自我反思,适应变化和接受支持方面找到意义. 了解这些优先事项是以人为中心的痴呆症护理的关键.
科学领域:
- 老年学是一门学科.
- 痴呆症护理研究研究
- 质量健康研究 质量健康研究
背景情况:
- 了解痴呆症患者的生活经验对于开发有效,以人为中心的支持策略至关重要.
- 研究往往侧重于临床方面,不太重视痴呆症患者在日常生活中真正重要的事情.
- 量身定制的干预措施需要深入了解痴呆症患者的优先事项和价值观.
研究的目的:
- 探索痴呆症患者的日常经历.
- 确定什么对痴呆症患者来说最重要,以便在家里生活得更好.
- 为以人为中心的护理和支持提供基础.
主要方法:
- 现象学方法利用对15名痴呆症患者的公开采访.
- 数据收集包括对每位参与者进行一次到三次的家庭参观和散步采访.
- 用开放式,轴向式和选择性编码进行描述性内容分析,由痴呆症患者的共同研究小组验证.
主要成果:
- 确定了最重要的事情的六个关键维度:有意义的活动,联系感,归属感,与自我联系,适应变化,并愿意接受帮助.
- 有意义的活动包括日常,家务,休和工作/志愿服务.
- 连接和归属扩展到人际关系,社区和珍贵的对象,突出了社会和物理环境的重要性.
结论:
- 痴呆症患者的日常生活需要平衡优先事项和日常能力.
- 个人经历是由生活史,社交网络和物理环境所塑造的.
- 识别和优先考虑对痴呆症患者最重要的事情对于提供有效,以人为中心的支持至关重要.
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