唐氏综合征成年人的医疗补助入学和服务使用情况
Eric Rubenstein1, Amy Michals2, Na Wang2
1Department of Epidemiology, Boston University School of Public Health, Boston, Massachusetts.
JAMA health forum
|August 11, 2023
概括
患有唐氏综合征 (DS) 的成年人表现出一致的医疗补助入学率和高医疗利用率,反映出显著的健康需求. 与没有发育障碍的人群相比,这一群体的成本更高,这凸显了医疗补助计划对DS个体的覆盖的重要性.
科学领域:
- 医学研究 医学研究
- 公共卫生 公共卫生
- 遗传学 是一个遗传学.
背景情况:
- 唐氏综合征是智力障碍的主要遗传原因,需要全面的医疗保健支持.
- 医疗补助对患有唐氏综合征的成年人至关重要,他们面临痴呆,肥胖和早期死亡的更高风险.
- 关于唐氏综合征成年人中医疗补助使用模式的数据有限.
研究的目的:
- 分析Medicaid招生,医疗保健服务利用率以及唐氏综合征成人相关费用.
- 将这些模式与智力障碍的成年人和一般的医疗补助人口进行比较.
- 了解医疗补助计划中这一高需求群体的财务和服务使用环境.
主要方法:
- 一项使用2011-2019年医疗补助索赔数据的队列研究.
- 纳入标准:18岁以上患有唐氏综合征或智力障碍的成年人,以及没有发育障碍的对照组.
- 分析的重点是人口统计特征,入学时间,医疗保健费用和服务使用.
主要成果:
- 分析了超过123,000名唐氏综合征患者,显示医疗补助计划的中位数入学时间为8年.
- 唐氏综合征患者的医疗费用比没有发育障碍的人 (6,173美元/人/年) 高得多 (26,278美元/人/年).
- 在唐氏综合征患者群体中,在种族和族群中观察到成本和索赔的差异.
结论:
- 患有唐氏综合征的成年人表现出一致的医疗补助入学率和高医疗保健服务使用率,与他们的健康需求相一致.
- 调查结果强调了唐氏综合征患者,智力障碍患者和一般医疗补助人口之间的医疗利用和医疗成本的显著差异.
- 医疗补助申请数据为患有唐氏综合征的个体的健康和福祉提供了宝贵的见解.
更多相关视频
09:18Measurements of Motor Function and Other Clinical Outcome Parameters in Ambulant Children with Duchenne Muscular Dystrophy
Published on: January 12, 2019
10.4K
12:55Multimodal Protocol for Assessing Metacognition and Self-Regulation in Adults with Learning Difficulties
Published on: September 27, 2020
8.5K
相关概念视频
Specialized Care Centers and Settings-II
756
Rural Health Centers
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
Rural health centers are specialized care facilities in remote locations with very few medical personnel. The primary care providers who run the centers are mostly Registered Nurse Practitioners. Here, emergency treatment is provided to critically ill or injured patients before they are transferred to the closest hospital. Fortunately, due to advancement in technology, many rural healthcare facilities and professionals have easy access to diagnostic and treatment...
756
Learning Disabilities
215
Learning disabilities are cognitive disorders caused by neurological impairments that affect cognitive functions like language and reading, without indicating overall intellectual or developmental challenges. These disabilities differ from global intellectual or developmental disabilities as they are limited to distinct cognitive functions. Common learning disabilities include dysgraphia, dyslexia, and dyscalculia, each of which impacts unique aspects of learning.
Dyslexia
Dyslexia is a...
Dyslexia
Dyslexia is a...
215
Intellectual Disability
117
Intellectual disability (ID) is a neurodevelopmental condition characterized by deficits in intellectual and adaptive functioning that manifest during the developmental period. This condition encompasses challenges in reasoning, memory, problem-solving, and learning, accompanied by impairments in everyday life skills, such as communication, self-care, and social interactions. Intellectual disability affects approximately 1% of the population in the United States, impacting an estimated 5...
117
Documentation in Long-Term and Home Healthcare Setting
922
Documentation in long-term care facilities and home healthcare settings is crucial for ensuring continuous, coordinated, and comprehensive care for patients. Each setting has its specific documentation processes and tools:
Long-Term Care Facilities
Long-Term Care Facilities
922
Specialized Care Centers and Settings-I
972
Specialized care settings or centers are situated in convenient locations within the community and offer care to a specific group or population. They consist of daycare facilities, mental health facilities, rural health facilities, educational institutions, industries, shelters for the homeless, and rehabilitation facilities.
Daycare centers
They provide several functions. Some facilities care for healthy newborns and children whose parents work, while others are medically focused and care for...
Daycare centers
They provide several functions. Some facilities care for healthy newborns and children whose parents work, while others are medically focused and care for...
972
Autism Spectrum Disorder
161
Autism spectrum disorder (ASD) is a neurodevelopmental condition marked by persistent deficits in social communication and interaction alongside restrictive and repetitive behaviors or interests. ASD is sometimes accompanied by intellectual impairment.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
These core symptoms manifest differently among individuals, ranging from mild to severe. The disorder's complexity extends beyond its clinical presentation, encompassing a diverse range of biological, cognitive, and sociocultural influences.
161
