远程医疗的使用,舒适性和感知有效性在脊柱肌肉缩社区
Ilse S Peterson1,2, Lisa T Belter3, Mary A Curry3
1Faegre Drinker Biddle and Reath, LLP, Washington, District of Columbia, USA.
概括
远程医疗增强了脊髓肌肉缩 (SMA) 患者的获取机会,大多数受访者有先前的经验. 收入和治疗史等因素影响了SMA社区中远程医疗的使用和感知到的有效性.
科学领域:
- 神经学 神经学
- 医疗保健服务研究 医疗服务研究
- 数字健康数字健康
背景情况:
- 远程医疗有可能改善流动性有限的人群的临床护理机会,包括脊髓肌肉缩 (SMA) 患者.
- 关于神经肌肉疾病,特别是SMA的远程医疗现有数据在很大程度上是事,需要进一步的以患者为中心的研究.
- 随着技术进步和COVID-19大流行所加速的远程医疗的日益普及,强调了了解患者观点的必要性.
研究的目的:
- 调查脊柱肌肉缩 (SMA) 社区中远程医疗的暴露,舒适度和感知效果.
- 确定与SMA患者的远程医疗利用和感知相关的人口,临床和态度因素.
- 为医疗保健专业人员和临床试验赞助商提供有关优化SMA护理远程医疗整合的见解.
主要方法:
- 治疗SMA在2021年进行了一项调查,以收集SMA受影响个人的远程医疗经验数据.
- 这项研究包括463名居住在美国的受 SMA 影响的个人,使用描述性统计,相关性和有序逻辑回归来分析数据.
- 进行了分层分析,以比较自我填写与护理人员填写的调查答案,并考虑了加权和未加权数据.
主要成果:
- 在463名受访者中,大约80%的受访者报告说他们以前使用过远程医疗.
- 远程医疗使用增加的预测因素包括男性性别,更高的收入,以前的SMA药物治疗,精神疾病史和对远程医疗的积极态度.
- 还确定了舒适度和感知有效性的重要预测因素,在自我和护理人员完成的调查中指出了差异.
结论:
- 在 SMA 社区,患者对远程医疗的体验和看法受到各种因素的影响.
- 研究结果为医疗保健提供者和临床试验赞助商提供了宝贵的见解,以加强SMA患者的远程医疗策略.
- 了解患者的观点对于利用远程医疗来扩大对护理的准入和改善SMA的结果至关重要.
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