护理人员对痴呆症作为终端疾病的看法不稳定
Chetna Malhotra1, Ishwarya Balasubramanian2
1Lien Centre for Palliative Care, Duke-NUS Medical School, Singapore; Program in Health Services and Systems Research, Duke-NUS Medical School, Singapore.
Journal of the American Medical Directors Association
|August 11, 2023
概括
很少有家庭护理人员正确地将痴呆症视为一种绝症. 这种感知随着时间的推移而变化,受痴呆症患者的影响.
科学领域:
- 老年病学和息治疗
- 神经退行性疾病 神经退行性疾病
- 护理人员支持护理人员支持
背景情况:
- 家庭护理人员对痴呆症作为终末期疾病的理解显著影响严重痴呆症患者 (PwSDs) 终身护理 (EoL).
- 在护理人员中这种看法的流行和演变仍未得到充分研究.
- 准确的感知对于适当的EOL护理规划和讨论至关重要.
研究的目的:
- 评估PwSDs的家庭护理人员对痴呆症的看法,认为它是一种绝症.
- 为了检查这种感知如何在16个月的时间内发生变化.
- 识别与护理人员的感知及其变化相关的因素.
主要方法:
- 一项前性队列研究,涉及215名新加坡社区住户PwSD的非正式照顾者.
- 在16个月内,护理人员每4个月进行一次调查.
- 混合效应的多项回归模型被用于分析感知和感知变化.
主要成果:
- 只有26%的护理人员最初认为痴呆症是一种绝症;这种看法随着时间的推移而变化.
- 患有急性疾病或更高功能依赖症的PwSD的护理人员更有可能将痴呆症视为终端.
- 患有激动行为的PwSD的护理人员更有可能错误地将痴呆症视为非终端.
结论:
- 少数护理人员认为痴呆症是末期的,这种理解是动态的,受PwSD的健康状况和行为影响.
- 这些发现凸显了改善有关痴呆症预后的沟通和教育的需要.
- 结果表明需要重新评估痴呆症护理中预后讨论的频率和内容.
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