患者对肉 Saroma 诊断的经验:诊断途径的过程映射练习
Sam Martin1, Sigrún Eyrúnardóttir Clark1, Craig Gerrand2
1Rapid Research Evaluation and Appraisal Lab (RREAL), University College London, London W1W 7TY, UK.
Cancers
|August 12, 2023
概括
由于对早期症状的认识较低,患者经常经历罕见瘤的诊断时间延长. 了解患者的旅程和诊断延迟对于改善肉瘤检测和患者结果至关重要.
科学领域:
- 在瘤学瘤学.
- 患者体验研究 研究研究
- 诊断途径 诊断途径
背景情况:
- 肉瘤的诊断往往因其罕见性和公众/专业人士对预诊断症状和征兆的认识较低而被推迟.
- 患者报告说,从症状发作到最终诊断的时间间隔较长,影响了治疗和结果.
研究的目的:
- 为了调查患者对瘤前诊断症状和症状的经验.
- 绘制患者到诊断的路径,识别寻求帮助的行为和诊断过程.
- 分析在肉瘤患者的诊断间隔的持续时间.
主要方法:
- 混合方法方法结合了定量和定性分析.
- 利用来自78名肉瘤患者的患者旅程数据的新过程映射.
- 检查患者间隔 (PI),诊断间隔和从症状发作到诊断的总间隔.
主要成果:
- 患者间隔 (PI) 的中位数为13天,年轻患者 (13-24岁) 的延迟更长.
- 诊断间隔的中位数为87.5天,其中21名患者先前有误诊.
- 症状经常被错误地归因于生活方式因素,导致诊断延迟.
结论:
- 该研究中的大多数肉瘤患者经历了长时间的诊断时间.
- 需要对诊断前肉瘤症状的演变进行进一步的研究,以开发有效的意识干预措施.
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