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慢性病对日常生活的影响:描述性的定性研究
Harith Eranga Yapa1,2, Shirley Chambers1, Louise Purtell3,4,5
1School of Nursing, Queensland University of Technology, Brisbane, Australia.
Journal of renal care
|August 13, 2023
概括
慢性病 (CKD) 显著影响日常生活,造成身体,心理和社会挑战. 了解这些日常经历是有效管理病情的关键.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學.
- 质量健康研究 质量健康研究
- 患者体验 患者体验
背景情况:
- 慢性病 (CKD) 具有显著的压力因素,影响身体,心理和社会福祉.
- 慢性脏病的长期性质需要了解其整个轨迹的患者经历.
- 慢性病及其治疗对日常活动的影响需要彻底调查.
研究的目的:
- 探索慢性病及其治疗对患者日常生活的多方面的影响.
- 为了深入了解各个阶段的CKD患者的生活经历.
- 识别CKD患者在日常生活中所面临的挑战.
主要方法:
- 使用有目的抽样进行描述性定性设计.
- 通过与25名成年参与者进行半结构化采访,深入收集各种CKD级别的数据.
- 根据修订后的威尔逊和克莱里模型指导的演性内容分析.
主要成果:
- 四个主要主题出现了:功能恶化,个人和家庭的变化,适应"新常态",以及未来的规划.
- 参与者报告了由于功能下降而出现的身体和心理问题.
- 确定了身体,社会和角色功能方面的局限性,以及必要的生活调整和未来决策.
结论:
- 患有CKD的人面临复杂的挑战,包括增加症状负担和功能限制,影响疾病各个阶段的日常生活.
- 护士在识别和解决慢性病患者未得到满足的需求方面发挥着至关重要的作用.
- 专注于症状评估和管理的早期,个性化的干预措施对于改善患者福祉至关重要.
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