#长期Covid革命:一个反射的主题分析
Melody Turner1, Helen Beckwith2, Tanisha Spratt3
1Faculty of Biology, University of Cambridge, UK.
Social science & medicine (1982)
|August 13, 2023
概括
长期COVID,一种由患者创造的疾病,在Twitter上出现. 对早期#longcovid推文的分析揭示了一个建立共识,克服耻辱感和推动对这种复杂疾病的认可的社会运动.
科学领域:
- 社会科学 社会科学 社会科学
- 数字健康数字健康
- 医学社会学 医学社会学
背景情况:
- 长期COVID被认为是第一个虚拟患者制造的疾病,起源于社交媒体话语.
- 在欧洲,在疫情爆发的前两年里,这种疾病影响了数百万人.
- 之前的研究集中在后期,没有对最初的出现和话语进行充分的研究.
研究的目的:
- 通过2020年5月至8月的Twitter数据分析长期COVID的初始社会结构.
- 了解在线共享患者体验如何有助于长期COVID的认可.
- 探索社交媒体在围绕长期COVID形成集体理解和运动中的作用.
主要方法:
- 从2020年5月到8月,收集了超过31,000条包含#longcovid标签的推文.
- 应用布劳恩和克拉克的反射主题分析.
- 理论框架使用伊恩·哈金的社会建设主义,并结合第一作者的人生经验.
主要成果:
- 认定长期COVID是一种多系统,循环状况,最初被污名化和误解.
- 展示了Twitter用户如何在症状上建立社会共识,以应对传统基于证据的医学所面临的挑战.
- 揭示了一个集体社会运动,促进了支持,克服了耻辱,并突出了未满足的医疗保健需求 (#研究康复认可).
结论:
- #longcovid运动展现了一种革命性的社会建设主义,导致现实世界的认可和潜在的医疗保健变化.
- 患者生成的在线内容暴露了传统基于证据的医学在识别新疾病方面的局限性.
- 关于新出现的疾病的未来研究应该考虑各种范式,包括"基于证据的医学加".
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