埃塞俄比亚阿姆哈拉地区国家对Mycobacterium tuberculosis和宿主遗传研究的快速生物伦理评估:朝着特定环境的伦理方法
Daniel Mekonnen1,2, Abaineh Munshea2,3, Endalkachew Nibret2,3
1Department of Medical Laboratory Sciences, School of Health Science, College of Medicine and Health Sciences, Bahir Dar University, Ethiopia.
Ethiopian journal of health sciences
|August 14, 2023
概括
埃塞俄比亚的快速伦理评估发现参与者对研究伦理和同意的理解很低. 公共教育对于改善研究实践和确保阿姆哈拉地区参与者福祉至关重要.
科学领域:
- 公共卫生 公共卫生
- 研究伦理学研究伦理学
- 基因组研究 基因组研究
背景情况:
- 在招募参与者之前,快速道德评估 (REA) 对于了解研究环境至关重要.
- 这项研究评估了社区对结核病 (TB) 的知识和埃塞俄比亚的研究.
- 它评估了招聘策略,信息提供和同意过程.
研究的目的:
- 评估社区对结核病和研究的知识.
- 确定有效的招聘策略.
- 评估信息和同意过程.
主要方法:
- 在埃塞俄比亚的阿姆哈拉地区使用混合方法方法.
- 数据收集包括调查,深度访谈和焦点小组讨论.
- 参与者包括研究人员,医疗保健专业人员和结核病计划官员.
主要成果:
- 超过71%的研究人员对目前的同意程序感到不满.
- 82.7%的研究人员认为参与者的最佳利益没有得到充分解决.
- 结核病患者和健康对照组都表现出对研究目标的误解.
结论:
- 研究人员对道德信息和同意程序的遵守率很低.
- 社区对研究伦理和基因组学术语的认识有限.
- 公共教育对于加强该地区的研究伦理至关重要.
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