欧洲卫生数据空间中的妥协和不对称性
1Faculty of Law, University College London 34668 Bentham House, Office 335, London WC1H 0EG UK.
European journal of health law
|August 15, 2023
概括
欧洲卫生数据空间条例旨在通过允许二次数据使用来改善科学研究. 然而,这一举措可能会引入隐私妥协和权力不平衡,需要仔细考虑和修改.
科学领域:
- 卫生政策 卫生政策
- 数据治理数据治理
- 生物伦理学生物伦理学
背景情况:
- 疫情后的时代强调了在科学研究中对健康数据的二次使用的需要.
- 数据聚合和计算方面的进步为研究提供了新的可能性.
- 欧盟委员会在2022年5月提出了一项针对二次健康数据使用的特定部门法规.
研究的目的:
- 分析欧洲卫生数据空间法规的潜在影响.
- 在拟议法规中确定隐私妥协和权力不对称性.
- 为一个更公平,更保护隐私的框架提出修正案.
主要方法:
- 对欧洲卫生数据空间法规提案的政策分析.
- 审查行政效率,技术潜力和道德考虑之间的平衡.
- 对潜在隐私风险和权力动态的比较评估.
主要成果:
- 该条例优先考虑了二级健康数据使用的行政效率和技术进步.
- 追求效率可能会导致严重的隐私妥协.
- 数据持有者和研究人员之间的潜在权力不对称性是拟议框架内固有的.
结论:
- 欧洲健康数据空间法规为二次健康数据的使用提供了机会和挑战.
- 迫切需要注意解决已确定的隐私和权力不平衡问题.
- 提出了具体的修正案,以减轻风险并确保道德数据治理.
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