对残疾或发育困难儿童的照顾协调:赋予家庭权力,并减轻支持他们的工作人员的负担
Sarah Myers1, Bethan Collins2, Sabine Maguire3
1Department of Paediatrics, Ysbyty Ystrad Fawr, Ystrad Mynach, UK.
Child: care, health and development
|August 15, 2023
概括
照顾协调 (CC) 显著改善了残疾或发育困难 (DDD) 的儿童家庭的体验. 它增强了家长的参与,简化了护理导航,并提供了整体支持,减轻了家庭和专业人员的负担.
科学领域:
- 儿科医疗保健 儿科医疗保健
- 提供残疾人服务.
- 护理管理 护理管理
背景情况:
- 近50%的残疾或发育困难 (DDD) 的儿童和青少年有复杂的需求,需要多学科的护理.
- 护理协调 (CC) 旨在集中联系和服务,以改善护理体验和家庭赋权.
- 评估了CC对DDD儿童的影响.
研究的目的:
- 评估残疾或发育困难 (DDD) 的儿童护理协调 (CC) 的影响和有效性.
- 评估护理导航,家长参与和对家庭的整体支持方面的改进.
- 从家庭和专业的角度了解CC的好处和挑战.
主要方法:
- 在南威尔士州Gwent进行了对CC服务的深入评估.
- 与9个家庭和14名卫生和社会护理专业人员进行了半结构化访谈.
- 用专题分析分析了采访成绩单.
主要成果:
- 家庭报告说,他们提高了导航,组织和理解护理的能力,父母参与度增加.
- 专业人士指出,错过的预约较少,CC作为整体支持的来源,包括实用和情感建议.
- 人们认为CC可以减轻专业服务的压力,尽管局限性包括员工能力和角色明确性.
结论:
- 护理协调员对于支持DDD儿童家庭至关重要,特别是在压力和资源短缺时期.
- CC使家庭能够有效地参与卫生服务.
- 照顾协调有利于家庭和专业人士通过加强支持和关系.
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