在患有自身免疫性风湿性疾病的患者中评估症状和寻求帮助:一种定性研究
Ling Xiang1, Sungwon Yoon2, Andrea H L Low3
1L. Xiang, MBBS, MMed, Department of Rheumatology and Immunology, Singapore General Hospital, and Yong Loo Lin School of Medicine, National University of Singapore.
The Journal of rheumatology
|August 15, 2023
概括
患有自身免疫性类风湿性疾病 (ARDs) 的患者经历了一段复杂的,反复的症状评估和寻求帮助的旅程. 了解影响这个过程的个人和文化因素是减少诊断延迟的关键.
科学领域:
- 类风湿病学 类风湿病学
- 自免疫性疾病 自免疫性疾病
- 患者体验 患者体验
背景情况:
- 长时间的诊断延迟在自身免疫性类风湿性疾病 (ARD) 中很常见.
- 症状评估不佳和患者寻求帮助的延迟对这些延迟有很大影响.
- 了解患者的体验对于改善早期诊断至关重要.
研究的目的:
- 调查ARD患者在亚洲多民族人口中的症状评估和寻求帮助的经验.
- 识别影响症状评估和寻求帮助行为的因素.
主要方法:
- 对33名被诊断为ARDs的患者进行了半结构化采访.
- 采访成绩单编码,使用基于症状评估的3个阶段 (检测,解释,响应) 的演方法.
- 使用感应编码来识别新兴的主题和子主题.
主要成果:
- 所有患者都表现出症状评估的3个阶段:检测,解释和反应.
- 观察到阶段之间的相互作用,解释影响检测和反应影响两者.
- 个人和社会环境因素,包括文化信仰和知识,显著影响了评估和寻求帮助.
结论:
- 患者通过症状评估和寻求ARD帮助的旅程是一个代的循环.
- 个人和社会环境因素在塑造这一旅程中起着至关重要的作用.
- 解决可修改因素有可能减少诊断间隔并改善患者的治疗结果.
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