共同创建一个复杂的,多组件的康复干预和可行性试验协议,用于PULSE研究
Gemma Pearce1, Nikki Holliday2, Harbinder Sandhu3
1Coventry University, Coventry, UK. gemma.pearce@coventry.ac.uk.
Pilot and feasibility studies
|August 15, 2023
概括
研究人员通过以患者为中心的方法共同创建了姿势性心律障碍综合征 (PoTS) 的康复干预. 这一创新计划,即PULSE干预,目前正在通过可行性试验进行测试.
科学领域:
- 心脏病学 心脏病学
- 康复医学 康复医学 康复医学
- 临床试验 临床试验
背景情况:
- 有限的研究存在于治疗姿势性心律障碍综合征 (PoTS).
- 专家共识建议PoTS进行运动,但缺乏严格的试验.
- 后乌拉尔高心律综合征运动 (PULSE) 研究旨在解决这一差距.
研究的目的:
- 共同创建PoTS的可行性试验协议.
- 为患有PoTS的个人开发定制的康复干预措施.
- 在整个研究过程中纳入患者和公众的参与.
主要方法:
- 在干预和试验设计中使用了"三个共同的框架" (共同定义,共同设计,共同改进).
- 通过英国慈善机构和NHS信托机构招募参与者.
- 涉及18名患者和公众参与成员和16名具有不同专业知识的共同创作者.
主要成果:
- 开发了一种以患者为中心的干预方法,包括在线体育活动,生活方式和行为改变支持.
- 干预强度以感知到的劳动力为指导,提供家庭使用的躺式自行车.
- 由于PoTS研究的重要性,患者发现随机化是可以接受的.
结论:
- 为PoTS开发了一个创新的,共同创建的干预和试验协议.
- 脉冲干预作为未来国际研究的模板.
- 目前正在进行一项随机可行性试验,将PULSE干预与常规护理进行比较.
关键词:
心脏康复心脏康复共同创造 共同创造联合制作 联合制作这种自主性很差.运动运动运动.可行性随机对照试验随机对照试验的可行性干预发展干预发展患者和公众参与.身体活动 身体活动静止性心动减速综合征是什么更多相关视频
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