评估心室辅助器件患者报告结果的新措施:MCS A-QOL研究的发现
Kathleen L Grady1, Michael A Kallen2, David G Beiser3
1Department of Surgery, Northwestern University, Feinberg School of Medicine, Chicago, Illinois.
概括
新措施评估心室辅助器械 (VAD) 患者的生活质量,捕捉独特的调整方面. 这些可靠和有效的工具帮助临床医生在患者咨询和VAD后护理.
科学领域:
- 心脏病学 心脏病学
- 医疗器械 医疗器械
- 心理测量 心理测量 心理测量
背景情况:
- 现有的措施不足以捕捉与心室辅助器件 (VAD) 生活的独特体验.
- 需要专门的工具来评估VAD后调整和与健康有关的生活质量 (HRQOL).
研究的目的:
- 开发和验证用于评估VAD后调整和HRQOL的测量系统.
- 创建适合VAD人群的心理测量健全的项目银行.
主要方法:
- 使用的物品响应理论 (IRT) 建模和差异物品功能测试.
- 从12个美国VAD计划中620名参与者的数据开发了5个项目银行 (3个修改,2个新).
- 通过与构造指标的相关性评估可靠性 (克朗巴赫α) 和有效性.
主要成果:
- 开发了5个新的VAD特定措施:VAD团队沟通,自我效能,被自我照顾困扰,对治疗的满意度和耻辱感.
- 项目银行表现出良好的至极好的可靠性 (克朗巴赫α ≥0.80).
- 大多数措施显示中等相关性 (≥0.30) 与有效性指标,除了VAD团队沟通.
结论:
- 开发的VAD测量是可靠的,有效的,并符合IRT建模标准.
- 这些工具可以向患者提供关于VAD作为治疗选择的信息.
- 这些措施可以指导临床医生提供VAD后干预和支持.
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