积极的家族癌症风险评估:英国初级保健服务发展研究
Abdul Rahman Badran1,2, Alice Youngs3, Andrea Forman3
1South West Thames Centre for Genomics, St George's University Hospitals NHS Foundation Trust, London, UK abdul.badran@nhs.net.
一个数字家族史问卷服务 (FHQS) 确定了在初级保健中患癌症风险增加的个体. 解决吸收障碍对于公平获得癌症查,预防和早期检测 (SPED) 至关重要.
科学领域:
- 基因组医学是基因组医学.
- 公共卫生 公共卫生
- 数字健康数字健康
背景情况:
- 家庭病史评估确定了针对性查,预防和早期检测 (SPED) 的更高癌症风险个体.
- 家庭史问卷服务 (FHQS) 是一个面向患者的在线工具,用于高效的风险评估.
- 目前英国癌症风险评估主要依赖于向全科医生自我介绍,导致SPED访问的不平等.
研究的目的:
- 加强社区获得癌症遗传风险评估的机会.
- 调查影响数字癌症风险评估工具普及的障碍.
主要方法:
- 使用FHQS的数字途径在四个一般实践中被开发出来.
- 通过短信或电子邮件邀请了38-50岁的3100人.
- 100名未回答者接受了调查,以确定参与障碍.
主要成果:
- 10% (304/3100) 登记FHQS;受访者更有可能是英国人,说英语,不需要翻译.
- 52%的受访者被自动确定为面临人口风险的人群.
- 剩下的36%的受访者需要进一步的查或遗传学转诊.
结论:
- 可以将FHQS整合到初级保健中,以有效地识别有风险的个体.
- 识别了吸收障碍,需要制定战略,以最大限度地影响和减少癌症SPED中的健康不平等.
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