流行病学问卷 (EPI-Q) - - 一个可扩展的,基于应用程序的健康调查,与电子健康记录和基因型数据相关联
Maxwell Salvatore1,2,3, Dylan Clark-Boucher1,2, Lars G Fritsche1,2,4
1Department of Biostatistics, University of Michigan, Ann Arbor, MI, USA.
Epidemiology and health
|August 17, 2023
概括
流行病学问卷 (EPI-Q) 收集自我报告的健康数据,以增强电子健康记录和遗传信息,以进行大型精确健康研究. 这个有价值的数据集通过整合患者报告的结果来支持各种健康研究.
科学领域:
- 精准医学是一门精准的医学.
- 流行病学 流行病学
- 医疗信息学 医疗信息学
背景情况:
- 电子健康记录 (EHR) 和基因型数据缺乏患者报告的全面健康信息.
- 密歇根大学 (UM) 精密健康计划旨在整合各种数据来源以实现个性化医疗.
研究的目的:
- 建立流行病学问卷 (EPI-Q) 以收集统一的,自我报告的健康数据.
- 为了补充UM精密健康队伍中现有的EHR和基因型数据.
- 为广泛的健康数据收集提供标准化的调查工具.
主要方法:
- 从现有的三个UM精准健康队伍 (密歇根基因组学倡议,心理健康生物库,新陈代谢,内分泌学和糖尿病) 招募了参与者.
- 使用了回顾性邀请方法,有5577人报名 (10.3%的响应率).
- 通过MyDataHelps平台收集的数据,允许整合非UM非密歇根医学EHR数据.
主要成果:
- 基线EPI-Q调查包括11个核心模块 (个人/家庭病史,生活方式,癌症查) 和11个可选模块 (财务毒性,职业暴露).
- 报名的参与者中有63.7%是女性,平均年龄为56.1岁.
- 招聘正在进行中,研究人员在IRB批准后可获得数据.
结论:
- EPI-Q成功地收集了广泛,统一的,自我报告的健康数据,以补充EHR和遗传信息.
- 该调查使用标准化工具,促进其在其他研究队伍中采用.
- 收集的数据将增强UM精密健康的理解,并支持未来的研究工作.
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