促进社区参与脊髓损伤研究:一个案例
Olivia M Biller1,2, Jason Biundo3, Edward S-L Mitchell4
1Center for Outcomes and Measurement, Jefferson College of Rehabilitation Sciences, Thomas Jefferson University, Philadelphia, PA, USA.
Spinal cord
|August 17, 2023
概括
社区参与脊髓损伤 (SCI) 研究提高了研究质量. 与有实践经验的个人合作,比如通过北美脊髓损伤联盟 (NASCIC),可以改善研究方法和参与.
科学领域:
- 康复研究 康复研究
- 知识翻译 翻译知识
- 基于社区的参与式研究.
背景情况:
- 社区参与对于脊髓损伤 (SCI) 研究中的有效知识转化至关重要.
- 涉及有实践经验的个人,护理合作伙伴和研究用户可以提高研究质量和相关性.
研究的目的:
- 倡导增加社区参与SCI研究.
- 为实施社区参与战略提供资源.
- 为了说明SCI研究的成功伙伴关系模式.
主要方法:
- 一篇详细介绍资源和案例研究的透视文章.
- 杰斐逊康复科学学院 (JCRS) 与北美脊髓损伤联盟 (NASCIC) 合作.
- 成立了一个由SCI患者组成的咨询委员会,指导一项关于临床结果评估发展的大规模研究.
主要成果:
- 咨询委员会提供了可行的建议,以加强招聘并尽量减少参与者的负担.
- 这次合作证明了将社区观点纳入研究设计的实际价值.
- 实现了社区参与战略的成功实施.
结论:
- 社区参与是SCI研究中可行的和有价值的方法.
- 研究机构和患者倡导团体之间的伙伴关系加强了研究质量.
- 纳入生活经验对于开发相关和有效的SCI临床结果评估至关重要.
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