与有残疾儿童的家庭接触时的伦理维度
Silke Daelman1, Elisabeth De Schauwer1
1Department of Special Needs Education, Faculty of Psychology and Educational Sciences, Ghent University, Ghent, Belgium.
Developmental medicine and child neurology
|August 18, 2023
概括
本综述提出了一种道德方法来支持有残疾儿童的家庭,强调新兴的倾听和接受不确定性. 它鼓励将互动视为增长的实验空间,而不是固定的结果.
科学领域:
- 关于残疾人的研究.
- 生物伦理学生物伦理学
- 家庭支持 家庭支持
背景情况:
- 患有残疾儿童的父母面临着复杂的,往往矛盾的需求和情绪.
- 当代能力主义观点对儿童和家庭潜力产生了模两可.
- 现有的支持模式可能无法完全解决这些家庭的细微现实.
研究的目的:
- 提出一种新的伦理框架,以与养育残疾儿童的家庭进行接触.
- 探索家庭,支持网络和专业人士之间的协作过程.
- 倡导一种以新兴倾听和认识的谦卑为中心的方法.
主要方法:
- 对以家庭为中心的护理中的伦理考虑进行审查.
- 探索涉及有生活经验的父母的合作过程.
- 使用叙事示例来说明关键的伦理原则.
主要成果:
- 为支持家庭提出"繁荣"和"本性"的伦理.
- 突出了新兴的倾听作为伦理遭遇的核心.
- 倡导将互动视为实验性的,开放的空间.
结论:
- 伦理参与需要认识的谦卑和接受不确定性.
- 专注于"不可估量的其他人"促进了变化和增长的潜力.
- 这种方法超越了规范性策略,转向了响应性,适应性支持.
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