在互联网上,德语语言的患者决策辅助工具对瘤患者的质量
Julia Möller1, Lena Josfeld2, Christian Keinki2
1Klinik für Innere Medizin II Hämatologie und Internistische Onkologie, Universitätsklinikum Jena, Am Klinikum 1, 07747, Jena, Germany. juliamoeller.fsujena@gmail.com.
BMC medical informatics and decision making
|August 18, 2023
概括
针对癌症患者的德语患者决策辅助工具 (PDA) 很少,质量也很差. 开发的评估工具可以帮助确定更好的PDA用于临床实践.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者赋权是患者赋权的一种方式.
- 在瘤学瘤学.
背景情况:
- 患者决策辅助器 (PDA) 是一种公认的工具,可以增强患者的决策能力.
- 以前的研究证实了PDA在临床环境中的实用性.
研究的目的:
- 为癌症患者识别可免费使用的德语PDA.
- 通过使用新开发的评级工具来评估这些已识别的PDA的质量.
主要方法:
- 使用德国主要的搜索引擎进行了模拟在线搜索.
- 根据国际和国家指导方针开发了一种质量评估工具.
- 四名评级人员使用开发的工具评估了所识别的PDA.
主要成果:
- 发现了有限数量的德语癌症PDA (22个200个URL中),罕见癌症的变异性较低.
- 这些PDA的整体质量很低,平均达到57.52%的最高评分.
- 较长的PDA通常在质量评估中得分更高.
结论:
- 目前,为癌症患者提供德语PDA的可用性和质量都不令人满意.
- 开发的评估工具为评估和识别高质量的PDA提供了实际框架.
- 进一步的研究应该集中在PDA长度对质量的影响上.
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