检查在临床摄入时使用数字工具对癌症患者进行大规模患者报告数据采集的差异
Dana E Rollison1, Brian D Gonzalez2, Kea Turner2
1Department of Cancer Epidemiology, Moffitt Cancer Center, Tampa, Florida, USA.
Cancer medicine
|August 19, 2023
概括
电子患者问卷 (EPQ) 的完成率很高,但人口群体之间存在差异. 需要有针对性的改进,以确保所有癌症患者的公平数据收集.
科学领域:
- 在瘤学瘤学.
- 医疗信息学 医疗信息学
- 医疗保健服务研究 医疗服务研究
背景情况:
- 像电子患者问卷 (EPQ) 这样的患者报告结果措施 (PROM) 对于改善医疗保健和患者结果至关重要.
- 莫菲特癌症中心利用EPQ收集全面的患者数据,包括人口统计,性取向和性别认同 (SOGI),病史,癌症风险因素和生活质量.
研究的目的:
- 根据人口和癌症相关特征,调查EPQ完成率的变化.
- 在大量癌症患者群体中识别数据完整性的潜在差异.
主要方法:
- 从2009年到2020年,莫菲特癌症中心对146,142名新成年患者的分析.
- 利用调度,EPQ和癌症登记数据进行全面分析.
- 使用后勤回归来确定患者特征与EPQ完成之间的关联.
主要成果:
- 自2014年以来,观察到高患者门户使用率 (81%) 和EPQ完成率 (79%).
- 女性,18-64岁的患者,以及局部或区域癌症患者更有可能完成EPQ.
- 黑人或非洲裔美国患者的完成率较低,以及那些首选语言是西班牙语或其他非英语语言的患者相比,白人和英语患者的完成率分别较低.
结论:
- 在不同的人口群体中,EPQ完成率差异很大,这表明需要有针对性的流程改进.
- 医疗机构必须批判性地评估数据收集方法,以解决潜在的差异,并确保数据的概括性和护理质量.
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