心理社会支持的经验和偏好:一项定性研究,探讨慢性血液癌症患者的观点
Rebecca Sheridan1, Dorothy McCaughan1, Ann Hewison1
1Department of Health Sciences, University of York, York, UK.
BMJ open
|August 19, 2023
概括
患有慢性血液癌症的患者随着时间的推移,经历了各种心理社会需求. 了解这些不断变化的偏好是提供有效的关键,在长期癌症旅程中提供量身定制的支持.
科学领域:
- 在瘤学瘤学.
- 心理社会瘤学
- 质量健康研究 质量健康研究
背景情况:
- 慢性血液性癌症通常涉及长期复发缓解的治疗途径.
- 由于与癌症相关的不确定性,患者和家人面临着长期的情感困难.
- 在这个人群中,随着时间的推移,心理社会支持需求和偏好未被充分探索.
研究的目的:
- 探索慢性血液癌症患者中心理社会支持的不断变化的经验和偏好.
- 确定影响心理社会支持可及性和利用性的因素.
- 为制定更及时和量身定制的支持策略提供信息.
主要方法:
- 使用半结构面试进行的定性,探索性研究.
- 在英国的血液恶性瘤研究网络中进行.
- 使用反射主题分析分析的数据.
主要成果:
- 三十五名患有慢性淋巴细胞白血病,卵泡淋巴瘤,边缘区域淋巴瘤或骨髓瘤的患者参与了这项研究.
- 出现了五个主要主题:获得支持,应对行为,在线支持论坛,家庭/朋友的影响力和未满足的需求.
- 随着时间的推移,患者对支持的态度发生了显著的变化,影响了对支持的可用性和使用.
结论:
- 患者对心理社会支持的偏好是高度可变的,并在整个癌症过程中发生变化.
- 建议长期癌症患者经常监测心理健康状况.
- 整体支持服务的标志应易于使用,以满足已识别的需求.
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