利益相关者对精准医学的期望:一项定性研究,以确定 (错误) 调整的领域
Tanya Knott1,2, James Creeden2,3, Benjamin Horbach4,5
1Sarah Jennifer Knott Foundation Dublin Ireland.
Health science reports
|August 21, 2023
概括
精准医学 (PM) 的实施需要所有利益相关者之间的合作,包括患者,提供者,研究人员,决策者和行业. 了解不同期望对于公平获取和成功整合PM策略至关重要.
科学领域:
- 基因组学就是基因组学.
- 翻译医学是一种翻译医学.
- 卫生政策 卫生政策
背景情况:
- 可持续地实施精准医学 (PM) 需要利益相关者的协调努力.
- 了解利益相关者的期望对于调整未来行动和战略至关重要.
研究的目的:
- 探讨不同利益相关者对精准医学 (PM) 的期望.
- 确定患者倡导者,医疗保健提供者,研究人员,政策制定者和行业代表之间的协议和不一致的领域.
主要方法:
- 由全球多利益相关者联盟从测试到向治疗 (FT3) 发起的一项定性研究.
- 与五个主要利益相关者团体进行了结构化采访.
- 用于结果分析的基础理论方法.
主要成果:
- 合作对于最佳的PM实施至关重要,行业代表大力倡导合作.
- 利益相关者一致认为,总理应该优先考虑患者的利益;医疗保健人员是门卫,政策制定者/付款者驱动访问.
- 关于行业在试验/访问和指导方针开发责任中的作用存在误解.
结论:
- 没有一个单一的利益相关者群体能够独立地推动PM变革.
- 需要采用全球性的多方利益相关者的协作方法,以支持普惠获得PM.
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