"大多数人不知道自闭症是什么":使用社交媒体分析解开自闭症披露
Chris Edwards1,2, Abigail M A Love1, Sandra C Jones3
1Autism Spectrum Australia, Australia.
Autism : the international journal of research and practice
|August 22, 2023
概括
自闭症披露是复杂的. 我们的社会社会社会社会社会社会社会.
科学领域:
- 神经发育障碍 神经发育障碍
- 社会心理学 社会心理学
背景情况:
- 自闭症披露是自闭症患者的重要决定.
- 披露可以带来积极的结果和挑战.
- 社会对自闭症的理解显著影响了披露经验.
研究的目的:
- 探索自闭症披露的现实世界经验和感知.
- 确定与共享自闭症诊断相关的关键主题和挑战.
主要方法:
- 对与自闭症披露相关的三年公共社交媒体帖子 (Reddit,Twitter) 的分析.
- 从各种自闭症和非自闭症成年人的帖子中进行定性数据分析.
主要成果:
- 一个主要的发现是社会普遍缺乏对自闭症的理解.
- 这种误解给自闭症患者在各种生活领域造成了重大困难,包括就业,人际关系和医疗保健.
- 其他关键主题包括隐私的重要性,尊重待遇,自闭症代表的价值,以及需要更大的非自闭症盟友关系.
结论:
- 加强对自闭症的社会理解对于为自闭症患者创造一个更安全的披露环境至关重要.
- 建议增加自闭症宣传,改善媒体代表性,以及更明显的自闭症角色模型.
- 解决社会误解可以使自闭症患者更舒服地披露他们的诊断.
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