加拿大家庭成员在医疗协助死亡期间的内,判断和保密的经历:一种定性描述性研究
Ellen T Crumley1, Jocelyne LeBlanc2, Brett Henderson2
1Faculties of Management (Crumley) and Medicine (Leck, Henderson, Jackson-Tarlton), Dalhousie University, Halifax, NS; Health Program (LeBlanc), St. Francis Xavier University, Antigonish, NS ecrumley@dal.ca.
CMAJ open
|August 22, 2023
概括
家庭成员在医疗协助死亡 (MAiD) 期间经历了意想不到的内,判断和保密. 支持计划应该提供指导,帮助家庭 navigate 这些困难的,但常见的,MAiD经验.
科学领域:
- 医学伦理 医学伦理
- 卫生社会学 卫生社会学
- 悲伤的心理学 悲伤的心理学
背景情况:
- 接受医疗协助死亡 (MAiD) 的家庭成员报告了秘密,判断和内等意想不到的经历.
- 这些经历对家庭成员的福祉和悲伤过程的影响尚未完全理解.
研究的目的:
- 检查加拿大经历过MAiD的家庭成员之间的内,判断和保密的经历.
- 了解这些意想不到的经历如何影响家庭的MAiD旅程.
主要方法:
- 一项定性描述性研究涉及45名加拿大家庭成员,他们有MAiD经验.
- 半结构面试是在2020年12月至2021年12月期间通过电话或视频通话进行的.
- 一个子集分析专注于意想不到的经历,将它们分类为内,判断和保密,然后进行主题分析.
主要成果:
- 参与者报告说,他们经历了意想不到的内,来自各种来源 (家庭,朋友,宗教人物,医疗保健专业人员) 的判断,以及围绕MAiD的保密性.
- 这些经历可能会使家庭成员的悲伤和丧失过程复杂化.
- 保密的原因包括禁止披露或宗教异议.
结论:
- 家庭成员报告说,在MAiD过程中,他们觉得自己没有准备好处理内,判断和保密.
- MAiD计划和提供者应该为家庭提供特定的信息,以减轻这些负担,并为共同的,意想不到的经历做好准备.
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