无法治愈的自我:与转移性乳腺癌谈判社会纽带和断开/连接
Sophie Lewis1, Giselle Newton2, Katherine Kenny3
1Sydney School of Health Sciences, The University of Sydney, New South Wales, Sydney, Australia.
专注于治疗的规范性癌症生存叙述可能会使转移性乳腺癌患者疏远. 这项研究揭示了不可治愈的癌症如何影响自我认知和人际关系,影响社会纽带和归属感.
科学领域:
- 健康和疾病的社会学
- 医学社会学 医学社会学
- 癌症幸存率研究 癌症幸存率研究
背景情况:
- 关于癌症幸存者的公共话语越来越多地强调治愈和积极性.
- 这种叙述可以将转移性癌症患者边缘化,影响他们的归属感.
- 对幸存者的规范愿景可能与那些患有无法治愈的疾病的人的生活经历不一致.
研究的目的:
- 探索不可治愈的癌症如何影响转移性乳腺癌妇女的自我理解和人际关系.
- 通过在转移性癌症的背景下检查社会纽带来扩大生物社会性和归属性的理论.
- 分析规范性生存叙述对转移性癌症患者的影响.
主要方法:
- 与38名澳大利亚妇女进行了半结构面试,这些妇女患有转移性乳腺癌.
- 实证理论原则被应用来分析采访数据.
- 社会纽带被概念化成四个类别:受到威胁,断绝,调和和灵活.
主要成果:
- 转移性癌症显著改变了自我认知,并改变了人际关系.
- 在日常生活中, (不) 可见性, (不) 真实性和 (不) 验证的经验很普遍.
- 他们发现了四种类型的社会纽带:受威胁的,被切断的,协调的和灵活的,反映出不同程度的理解和联系.
- (不可见) 和 (无效) 是社会纽带形成和维持的关键因素.
结论:
- 关于癌症存活率的主导叙述以治疗为中心,可以排除和取消转移性癌症患者的经验.
- 该研究强调了转移性癌症患者的社会纽带的不稳定性,受社会期望和个人经验的影响.
- 了解社会纽带的细微差别对于支持与不可治愈的癌症相处的人来说至关重要.
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