对于患有腹腔疾病的儿童的主要照顾者的经验和困难 - - 定性研究
1Indian Council of Social Science Research, New Delhi, 110 029, India. sadafsamihameed@gmail.com.
概括
患有腹腔疾病 (CeD) 的儿童的初级照顾者 (PCT) 在诊断和管理方面面临重大挑战. 解决这些困难对于改善CeD儿童及其家人的生活质量至关重要.
科学领域:
- 儿科胃肠病学 儿科胃肠病学
- 公共卫生 公共卫生
- 定性研究是一种定性研究.
背景情况:
- 在儿童中诊断乳病 (CeD) 对主要照顾者 (PCT) 提出了独特的挑战.
- 在印度背景下,PCT在儿童中管理CeD的经验存在有限的研究.
研究的目的:
- 探索被诊断患有乳病 (CeD) 的儿童的主要照顾者 (PCT) 的生活经验.
- 确定PCT在管理他们孩子的CeD时所面临的具体困难和担忧.
主要方法:
- 一项使用有目的抽样进行的定性研究.
- 在新德里一家三级医院,与10名患有CeD的儿童的PCT进行了印度语的半结构面试.
主要成果:
- PCT遇到的挑战包括错误诊断,晚期诊断以及关于CeD和小麦的误解.
- 显著的担忧来自于社会耻辱,坚持无质饮食 (GFD),财务负担以及对儿童健康和家庭动态的影响.
- 有效的管理涉及家庭支持,遵守GFD和早期诊断.
结论:
- 管理儿童腹腔疾病的PCT经历了相当大的情感和实际负担.
- 需要建议来支持PCT,减轻管理压力,并解决与CeD相关的日常障碍.
关键词:
自身免疫性疾病是一种自身免疫性疾病.结核病是什么? 结核病是什么?结核病患者可能会出现这种情况.面临的挑战 挑战孩子 孩子 孩子 孩子慢性腹 慢性腹 慢性腹家庭 家庭 家庭 家庭没有质的无质饮食.印度 印度 印度父母 父母 父母 父母 父母 父母 父母主要的护理人员.定性研究是一种定性研究.专题分析 专题分析小麦小麦小麦小麦的小麦.更多相关视频
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