神经炎症疾病患者的息护理知识和态度
Aliza Bitton Ben-Zacharia1,2,3, Helen T Brugger4,5, Stephanie Carbone4,6
1Hunter Bellevue School of Nursing, New York, New York, USA.
Journal of palliative medicine
|August 23, 2023
概括
患有神经炎症疾病的患者对息治疗 (PC) 的知识有限. 关于PC的早期教育对于改善患者的治疗结果和在整个疾病过程中提供支持至关重要.
科学领域:
- 神经学 神经学
- 抚慰性护理是一种缓解性护理.
- 神经免疫学 神经免疫学
背景情况:
- 神经炎症性疾病会导致渐进性残疾.
- 尽管全球增长,但神经病学领域的息护理 (PC) 使用率很低.
- 了解患者的知识是改善PC集成的关键.
研究的目的:
- 评估神经炎症疾病患者对息护理 (PC) 的知识和态度.
- 确定影响该群体PC知识的因素.
- 为更好地将PC整合到神经治疗中的策略提供信息.
主要方法:
- 86名患有神经炎症疾病的患者的横截面研究.
- 使用的息治疗知识量表 (PaCKS) 和PC健康信息国家趋势调查 (HINTS).
- 以穆雷的过渡理论为指导,专注于决策,沟通和协调护理.
主要成果:
- 42%的患者从未听说过PC; 46%的人几乎不知道.
- 50%的人理解PC的目标和服务.
- 高等教育与更高的PC知识相关;记忆丧失影响了PaCKS分数.
结论:
- 患有神经炎症疾病的患者对息治疗有部分知识.
- 有一个显著的需要早期和持续的患者教育关于PC.
- 有效地整合PC服务需要解决知识差距和患者特定因素.
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