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出国旅行进行质子束疗法:一个回顾性面试研究

Kelly Skelton^1,2,3, Peter Gorayski^1,2,4, Hui Tee^1,2

¹Australian Bragg Centre for Proton Therapy and Research, South Australian Health and Medical Research Institute, Adelaide, South Australia, Australia.

Journal of medical radiation sciences

|August 25, 2023

概括

出国进行质子束疗法 (PBT) 的家庭需要更好的协调护理和住宿支持. 这项研究强调了在国外接受PBT治疗期间,年轻的癌症患者及其家属的未满足需求.

科学领域:

在瘤学瘤学.
患者支持服务服务.
医疗保健服务研究医疗服务研究

背景情况:

国际癌症治疗旅行对年轻患者及其家人来说带来了独特的挑战.
质子束疗法 (PBT) 是一种专门的癌症治疗方法,通常需要海外旅行.
了解患者和家庭的经验对于改善支持性护理至关重要.

研究的目的:

了解澳大利亚家庭和年轻患者为PBT出国旅行的经历.
为了确定在远离家乡的PBT治疗期间的支持性护理需求.

主要方法:

使用半结构面试进行的回顾性定性研究.
包括25岁以下的参与者及其家属在PBT (2017-2020) 期间出国参加PBT (2017-2020).
使用 Microsoft Excel 中的主题编码进行数据分析,来自七个家庭的17名参与者.

主要成果:

大多数参与者在抵达之前报告的旅行和治疗安排缺乏协调.
与共享住房相比,酒店住宿导致了更大的隔离.
癌症度较高的患者经历了不充分的护理提供和服务可用性.

结论:

在服务,住宿和护理协调方面存在显著的差距,这些差距主要是因为患者在国际旅行.
由消费者领导的工作组可以加强在国外接受PBT的家庭的护理模式.
家庭愿意分享经验,并支持其他人前往PBT.

关键词:

在瘤学瘤学.质子疗法是一种质子疗法.辐射辐射辐射辐射的辐射辐射疗法辐射疗法旅行是为了癌症治疗.

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