个人健康记录 (PHR) 经验和建议在沙特阿拉伯的转型
Abdullah Alanazi1,2, Mohammed Alanazi1,2, Bakheet Aldosari1,2
1Health Informatics Department, King Saud Ibn Abdulaziz University for Health Sciences, P.O. Box 3660, Riyadh 11481, Saudi Arabia.
Journal of personalized medicine
|August 25, 2023
概括
大多数患者打算使用个人健康记录 (PHR),发现它们有用且容易. 然而,不到一半的人认为他们的PHR改善了健康,这表明需要增强功能和数据集成.
科学领域:
- 医疗信息学 医疗信息学
- 患者参与 患者参与
- 数字健康数字健康
背景情况:
- 个人健康记录 (PHR) 是患者控制的健康数据平台,通常与电子医疗记录 (EMR) 相关联.
- 尽管有广泛的可用性,但关于PHR采用,功能,障碍和患者健康影响的重大问题仍然存在.
- 了解患者对PHR实用性和有效性的看法对于改善医疗保健提供至关重要.
研究的目的:
- 调查患者的意图,感知到的有用性,易用性和个人健康记录 (PHR) 的基本功能.
- 评估PHR对患者健康状况的影响,并确定采用的障碍.
- 探索患者对PHR系统内隐私和数据准确性的担忧.
主要方法:
- 进行了一项基于调查的横截面描述性研究.
- 在2022年9月至2023年2月期间,来自沙特阿拉伯四家三级医院的396名患者参与了这项研究.
- 一项经过验证的调查评估了使用意图,必要的功能,障碍,预期结果和感知到的健康影响.
主要成果:
- 报告了使用PHR的高意图 (93%),感知到的有用性 (94%) 和易用性 (94%).
- 基本功能包括访问医疗记录 (77%),预约安排 (88%),药物更新 (90%),数据跟踪 (70%) 和个性化教育 (78%).
- 只有54%的人认为健康影响是积极的,54%的人表示隐私问题,46%的人表示准确性问题. 没有发现任何重大收养障碍.
结论:
- 虽然患者表现出对PHR的高度意图和易于使用的感知,但不到一半的患者报告了改善的健康结果.
- 医疗保健组织必须超越基本功能来增强PHR功能,将医院和患者生成的数据整合到全面的健康管理中.
- 需要进一步发展和利益相关方的合作,以最大限度地提高PHR对个人健康的影响,并确保数据准确性和隐私.
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