年轻成年人参与父母参与基因组决策研究研究的理由
Julia M Pascal1,2, Michelle L McGowan3,4, Amy A Blumling1
1Division of Human Genetics, Cincinnati Children's Hospital Medical Center, Ohio, Cincinnati, USA.
Journal of genetic counseling
|August 26, 2023
概括
决策进行基因组测试的年轻人可能需要父母的支持,特别是如果他们有亲密的关系或父母参与医疗保健. 由于后勤原因,有些人更喜欢独立决定.
科学领域:
- 基因组医学是基因组医学.
- 青少年健康 青少年健康
- 生物伦理学生物伦理学
背景情况:
- 年轻人面临越来越多的基因组测试机会.
- 他们对个人基因组信息的准备和决策过程尚不清楚.
研究的目的:
- 探索年轻人参与或不参与基因组测试决策中的父母的原因.
- 评估年轻人对父母在医疗保健决策中的角色的看法.
主要方法:
- 对19名年轻成年人 (18-21岁) 进行了定性采访,他们决定学习个人基因组风险和载体状态.
- 采访采用解释性描述性分析方法,以感应和演的方式编码.
主要成果:
- 后勤问题是年轻人决定不让父母参与的首要原因.
- 亲密的关系和父母先前参与的医疗保健影响了决定包括父母.
- 参与者描述了逐渐向独立的医疗保健决策过渡,受情况严重程度和熟悉程度的影响.
结论:
- 年轻人对医疗决策的舒适程度各不相同,他们可能会从父母或同伴的支持中受益.
- 未来的基因组研究和临床实践应该为年轻人提供包括支持人员的选择.
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