之前的电子学习工具对不同族裔夫妇的遗传咨询结果的影响 唐氏综合征查测试异常:一项随机对照试验
Olfat Aboleil-Zoubi1,2, Chen Gafni-Amsalem1,2, Lilach Peled-Perets1
1The Genetics Institute Emek Medical Center, Afula, Israel.
Journal of genetic counseling
|August 26, 2023
概括
一个教育动画改善了经过异常唐氏综合征 (DS) 查后接受遗传咨询的夫妇的知识. 虽然它没有影响焦虑,但它显著增加了知情选择,特别是那些基因素质较低的人.
科学领域:
- 产前诊断 在产前诊断
- 遗传咨询 遗传咨询 遗传咨询
- 医疗信息学 医疗信息学
背景情况:
- 对于异常唐氏综合征 (DS) 查的遗传咨询 (GC) 需要患者掌握复杂的信息.
- 电子学习工具 (e-learning) 可以通过为个人需求释放会话时间来增强GC.
- 对于异常DS查结果的电子学习存在有限的研究,主要集中在查吸收上.
研究的目的:
- 评估电子学习动画电影对具有异常DS查结果的夫妇产前GC结果的影响.
- 评估电子学习工具在提高知识,明智选择,满意度和焦虑程度方面的有效性.
主要方法:
- 一个随机对照试验,涉及321名参与者,DS查结果异常.
- 参与者被分配到动画电影组,小册子组或对照组.
- 咨询前和后的问卷评估了知识,知情选择,满意度和焦虑.
主要成果:
- 动画组的知识水平显著提高,特别是在少数群体参与者中.
- 虽然焦虑和知情选择在各组之间没有统计学上的差异,但观看动画预测了知情选择.
- 与对照组相比,观看动画的参与者做出知情选择的可能性是对照组的三倍.
结论:
- 电子学习动画工具是有效的和可接受的,以提高产前遗传咨询的唐氏综合征查.
- 该工具特别有望改善知情决策,特别是在基因素养和教育水平较低的人群中.
- 有针对性的干预措施是必要的,以支持具有较低遗传素养和教育背景的少数群体.
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