亚托皮肤炎疼痛的影响:采访和聚焦组研究与患者及其家人
Ashley M Snyder1,2, Vanina L Taliercio1, Adelheid U Brandenberger3
1Department of Dermatology, University of Utah, Salt Lake City, UT, United States.
JMIR dermatology
|August 26, 2023
概括
亚托邦性皮肤炎引起的疼痛显著影响患者的生活质量. 了解疼痛 了解疼痛
科学领域:
- 皮肤病学 皮肤病学
- 疼痛管理 疼痛管理
- 生活质量研究 研究 生命质量研究
背景情况:
- 亚托皮炎 (AD) 经常与疼痛有关,这是一个经常被忽视的症状.
- 这种疼痛可以大大降低患者的与健康相关的生活质量 (HRQL).
研究的目的:
- 研究阿托皮性皮肤炎患者及其家属所经历的疼痛的多方面的影响.
- 为了确定与AD相关的疼痛如何影响整体HRQL.
主要方法:
- 使用焦点小组和采访对33名参与者 (21名患者,12名家庭成员) 的定性研究.
- 对转录的数据进行主题分析,以确定关键的疼痛经历和影响.
主要成果:
- 阿尔茨海默病的疼痛通常与和皮肤脱皮有关,通常被描述为灼伤,刺痛或刺伤.
- 疼痛会对日常活动产生负面影响,包括睡眠,社交,服装选择和亲密关系.
- 疼痛管理有所不同;改善皮肤的全身治疗消除了相关的疼痛.
结论:
- 疼痛是阿托皮性皮肤炎患者HRQL的关键决定因素.
- 临床医生必须认识到并解决疼痛是AD管理中的一个重要的临床问题.
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