接触性皮肤炎生活质量指数 (CDQL):调查开发和内容有效性评估
Mary K Hill1, Melissa R Laughter2, Cecile I Harmange2
1Department of Dermatology, University of Colorado Anschutz Medical Campus, Aurora, CO, United States.
JMIR dermatology
|August 26, 2023
概括
一个新的接触性皮肤炎生活质量 (CDQL) 指数是使用专家共识开发的. 这个工具测量了接触性皮肤炎的成年患者的生活质量,解决了症状,情绪和日常功能.
科学领域:
- 皮肤病学 皮肤病学
- 生活质量研究 研究 生命质量研究
- 健康结果 测量 测量
背景情况:
- 接触性皮肤炎 (CD) 患者的生活质量 (QoL) 的有限测量和报告.
- 需要专门针对CD的标准化QOL评估工具.
研究的目的:
- 为成人患者开发标准化的接触性皮肤炎生活质量指数 (CDQL).
- 为CD创建一个全面的QOL测量.
主要方法:
- 专家共识使用修改后的Delphi过程.
- 两轮基于网络的调查发送给参加2018年美国接触性皮肤炎协会会议的医生.
- 如果 ≥78%的项目被列为相关/非常相关,并且中位数≥3.25.5,则达成共识.
主要成果:
- 22个主题达成共识,被纳入CDQL.
- 该索引涉及症状,情绪,日常生活功能,社会/身体功能,工作/学校功能和治疗.
- 基于医生专家的共识而开发.
结论:
- 接触性皮肤炎生活质量指数 (CDQL) 是一个全面的,CD特异性的QOL指标.
- 通过专家共识使用修改后的Delphi过程开发.
- 专为照顾成年CD患者的医疗保健专业人员使用.
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