关于可见和长期皮肤状况的博客经验:解释性现象学分析
Selina K Tour1, Andrew Thompson2, Ruth A Howard1
1School of Psychology, University of Birmingham, Birmingham, United Kingdom.
JMIR dermatology
|August 26, 2023
概括
博客帮助有明显皮肤疾病的人通过促进联系和同行支持来管理痛苦和孤立. 这种在线自我管理策略可以导致人们更好地接受他们的状况.
科学领域:
- 皮肤病学 皮肤病学
- 心理学 心理学 心理学
- 数字健康数字健康
背景情况:
- 可见的皮肤状况显著影响生活质量,与慢性疼痛或抑郁症相比.
- 患有这些疾病的个人面临着耻辱和缺乏心理社会支持.
- 在线博客作为一个自我管理和同行支持工具,为那些长期条件.
研究的目的:
- 为了调查那些在博客上谈论自己的健康状况的长期可见皮肤病患者的经历.
- 了解博客如何影响自我管理和心理社会福祉.
主要方法:
- 系统的博客搜索和参与者招聘调查.
- 使用解释性现象学分析 (IPA) 分析的定性访谈.
- 使用定性模板方法分析博客内容.
主要成果:
- 博客经历了与他们的皮肤状况相关的不确定性,痛苦和孤立.
- 博客为管理失败感和挑战孤立提供了一个平台.
- 在线连接和支持网络使人们更容易接受他们的条件.
结论:
- 博客提供了一种自然主义的方法来自我管理从可见的皮肤状况的痛苦.
- 它将情感披露的好处与同行支持的维度相结合.
- 基于网络的心理社会干预可以根据观察到的博客行为进行调整.
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