来自沙特阿拉伯和科威特的性结肠炎患者的医生和患者指导疾病评估之间的相关性:来自ICONICIC的数据
Othman Al Harbi1, Salem Owayed2, Yousif Qari3
1Gastroenterology Department, King Khalid University Hospital, King Saud Medical City, Riyadh, Saudi Arabia.
概括
疾病图像表示和自我测量 (PRISM) 工具有效评估性结肠炎 (UC) 负担. PRISM与其他方法显示中等相关性,验证了其在临床实践中的使用.
科学领域:
- 胃肠病学 胃肠病学
- 临床评估工具 临床评估工具
- 患者报告的结果
背景情况:
- 性结肠炎 (UC) 对患者造成了重大疾病负担.
- 准确评估感知疾病负担对于有效的UC管理至关重要.
- 已建立的患者健康问卷存在,但需要新的工具.
研究的目的:
- 为了验证新的,非语言的疾病图像表示和自我测量 (PRISM) 工具在UC感知疾病负担的有效性.
- 评估最近被诊断患有UC的患者的累积负担.
- 将PRISM的有效性与已建立的患者健康问卷进行比较.
主要方法:
- 观察性,前性,非干预性,多国多中心研究 (ICONIC).
- 两年的随访时间,每6个月间隔5次访问.
- 分析来自沙特阿拉伯和科威特的患者数据,包括人口统计,疾病数据,治疗,医疗资源和生活质量调查问卷.
- 在PRISM和其他评估方法之间使用Spearman的rho进行相关性分析.
主要成果:
- 通过PRISM评估的疾病负担在24个月内有所改善.
- 国家分析中的疾病严重程度不如全球队列那么有利.
- 在PRISM和其他评估方法之间检测到中等相关性.
结论:
- 温和的相关性支持PRISM工具用于评估UC相关负担的有效性.
- 患者和医生对UC负担的看法差异可能表明存在沟通缺口.
- PRISM提供了一种有价值的非语言方法,用于评估UC患者的疾病负担.
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