障碍作为帕金森病中感知健康状况的衡量标准
Daniela Pimenta Silva1, Miguel Coelho1,2, Tiago Soares2
1Department of Neurosciences and Mental Health Hospital de Santa Maria, CHULN Lisbon Portugal.
Movement disorders clinical practice
|August 28, 2023
概括
帕金森病 (PD) 患者经历轻度至中度残疾,主要影响移动性和职业. 这种障碍受到运动障碍和日常生活影响的重大影响,这表明它提供了超出生活质量措施的附加值.
科学领域:
- 神经学 神经学
- 健康 结果 研究 研究 结果
背景情况:
- 障碍是一种以患者为中心的健康状况衡量标准,反映了环境对日常生活的影响.
- 之前对帕金森病 (PD) 障碍的评估主要集中在晚期阶段.
研究的目的:
- 在更广泛,更多样化的帕金森病患者样本中描述残疾.
主要方法:
- 一项横截面研究涉及405名PD患者.
- 使用了MDS-UPDRS,统一运动障碍评分表,非运动症状问卷,PDQ-8,EQ-5D-3L和伦敦残疾量表 (LHS).
主要成果:
- 平均LHS为0.652,其中"流动性"",职业"和"身体独立"受影响最多.
- 随着疾病持续时间的延长,年龄的老龄化和残疾增加,残疾变得更严重.
- 日常生活中的运动体验 (EDL),运动残疾 (MDS-UPDRS-III) 和PDQ-8独立预测残疾.
结论:
- 伦敦残疾人尺度 (LHS) 是容易管理,并被患者和护理人员很好地容忍.
- 患PD患者的残疾是轻度至中度,与运动残疾和其对日常生活和生活质量的影响密切相关.
- 与生活质量相比,残疾似乎衡量了与生活质量相比,感知到的健康状况的不同方面,提供了附加值.
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