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干净的间歇性导管对学生和家庭在学校环境中的影响
Stuart B Bauer1,2, Kennary Choung1, Paige Sable1
1Department of Urology, Boston Children's Hospital, Boston, Massachusetts, USA.
Neurourology and urodynamics
|August 28, 2023
概括
学校的干净间歇性导管 (CIC) 给学生和家人带来了挑战. 提高学校工作人员的意识和支持对于优化需要CIC的儿童的教育经验至关重要.
科学领域:
- 儿科泌尿外科 儿科泌尿外科
- 儿童健康管理 儿童健康管理
- 教育支持系统教育支持系统
背景情况:
- 干净的间歇性导管 (CIC) 对于患有下尿路功能障碍的儿童的膀管理至关重要.
- 之前的研究重点是功能,感染和失禁,对学校环境的关注有限.
- 了解学生和家庭在学校期间管理CIC的实践经验是必不可少的.
研究的目的:
- 探索学生和护理人员在学校环境中使用CIC的经验.
- 识别学生在上课时需要CIC所面临的挑战.
- 了解学校如何适应需要CIC的学生.
主要方法:
- 一种使用半结构化家庭访谈的定性现象学方法.
- 有目的的抽样招募符合条件的参与者.
- 基于专家意见和试点测试的家庭/提供者共同设计的问卷的开发.
主要成果:
- 对40个家庭的采访揭示了影响在学校需要CIC的学生的关键主题.
- 学校工作人员往往缺乏对CIC影响的认识和准备.
- 学校的卫生间设施不足 (位置,清洁,隐私) 构成了重大挑战,阻碍了课外参与.
结论:
- 解决需要CIC的学生的需求需要有针对性的干预和协作努力.
- 关键是有效的护理协调,包括护理人员,医疗保健提供者和学校人员.
- 开放的沟通和战略规划可以增强管理CIC的学生的教育经验.
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