智力和发育障碍研究:通过包容和公平获得成功
Harolyn M E Belcher1, Christina E Love2, Andrew H Segal3
1Harolyn M.E. Belcher, Kennedy Krieger Institute and Johns Hopkins University School of Medicine.
American journal on intellectual and developmental disabilities
|August 30, 2023
概括
关于智力和发育障碍 (IDD) 的研究需要解决由主流文化方法造成的差距. 为更公平的IDD研究,建议采用最新的研究系统和纳入社会正义原则.
科学领域:
- 健康 公平 卫生 公平
- 关于残疾人的研究.
- 在研究中的社会正义.
背景情况:
- 目前关于智力和发育障碍 (IDD) 的研究往往反映了"主导文化"的观点.
- 这种方法在理解和解决IDD方面造成了重大差距和不平等.
- 需要重新评估和重组IDD的研究企业.
研究的目的:
- 突出IDD研究中存在的不平等现象,这些不平等现象源于主流的文化范式.
- 倡导研究系统的新型化,以促进公平.
- 为更具包容性和社会公正的IDD研究提供指导.
主要方法:
- 这篇文章批判性地分析了IDD当前的研究策略.
- 它建议从主导的文化框架转向更公平的模式.
- 应用社会正义,平等和包容性镜头,结合临床人类学方法.
主要成果:
- 在传统的IDD研究方法中发现了重要的局限性和偏见.
- 提出了一个研究系统的最新框架,以便更好地响应多样化的群体.
- 强调跨学科和文化敏感的方法的重要性.
结论:
- 在IDD研究中实现公平需要在研究范式和系统中进行根本性的转变.
- 采用社会正义框架和临床人类学方法可以提高包容性和相关性.
- 未来的研究必须积极拆除现有的不平等现象,以更好地服务于IDD患者及其社区.
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