在研究智力和发育障碍方面实现公平
Sara T Kover1, Leonard Abbeduto2
1Sara T. Kover, University of Washington.
American journal on intellectual and developmental disabilities
|August 30, 2023
概括
智力和发育障碍 (IDD) 研究需要的不仅仅是多样化的样本和研究人员. 它需要一个范式的转变,以重视多个身份,并将社区作为合作伙伴来减少社会不平等.
科学领域:
- 社会科学 社会科学 社会科学
- 关于残疾人的研究.
- 健康 公平 卫生 公平
背景情况:
- 智力和发育障碍 (IDD) 研究往往缺乏多样性,只关注样本人口统计和研究人员背景.
- 该领域因过度依赖主导的文化观点而受到批评,这可能会使社会不平等继续存在.
- 现有的研究模型可能无法充分解决残疾和身份的多面性质.
研究的目的:
- 为IDD研究提出一个新的框架,以解决系统性多样性问题.
- 将研究范式从基于赤字的方法转变为以人为中心的方法.
- 促进自我倡导者和多样化的社区作为研究合作伙伴的纳入.
主要方法:
- 概念框架的发展.
- 分析现有的IDD研究实践及其局限性.
- 关于研究实施的系统变革方法的建议.
主要成果:
- 拟议的框架尽量减少对诊断类别的依赖.
- 它将重点转移到以人为中心的模型,并承认多重身份.
- 它倡导与自我倡导者和各种社区建立真正的伙伴关系.
结论:
- 目前的IDD研究实践加剧了由于缺乏多样化的视角而造成的社会不平等.
- 需要一个范式的转变,以创造更公平和包容的研究.
- 实施这一框架需要在研究企业内部进行重大系统变化.
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